My Diagnosis Story...

Dette’s story

My journey to diagnosis…

My diagnosis story started in 1992, when I was 21, although I had had blood tests done when I was little, as my Mam was diagnosed in her 30’s, Coeliac was never detected. I started suffering with tummy aches, headaches, nausea, diarrhoea around 1992, it was having an effect on my health. I was at college at this time, & was on placement in a school, I would go home during breaks, because I couldn’t use the toilet in the school, because of smell when I had to go, it made me uncomfortable. It was around this time when I started having blood tests taken, this went on  till 2007.  All gave a negative result, eventually I had a negative/positive result, I was put on a gluten free diet, a week before I had an endoscopy I was told to eat gluten. I had the test came back negative. I was told by the Dr to eat gluten for 4/5 months, when I had another endoscopy done, 6 bites of my gut was taken, I was then diagnosed with Coeliac.

I found it really hard adjusting, as everything I ate at this time, pretty much included gluten, wheat, barley etc, from cereals, bread to soup, my favourite breakfast cereal was Shredded Wheat & Weetabix, I drank Horlicks, Ovaltine & Robinsons orange barley, I think it took over 6 months to adjust, & even then I would slip to old eating habits, like fish finger sandwiches.

My advice for newly diagnosed…

My 3 tips would be,
1) Read a lot about your condition, especially what grains you can & cannot eat
2) Take each day at a time, it’s a difficult adjustment to make, stock up on fresh fruit, vegetables, rice, GF pasta, although it’s a difficult time, concentrating on what you can eat will help, write a list to take shopping
3) Join Coeliac UK, the book you receive will help you no end, join groups in your area they will encourage & help you on your journey, remember there’s a lot you can’t eat now, but equally there is so much you can enjoy as well

My favourite recipes are Tomato & basil bread, fresh cream Victoria sponge, ice slices.

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